Dementia Information and References: Online

Blog Post: Adapting Your Home for Family Members With Alzheimer’s or Dementia, Kathryn Haslanger. The Huffington Post, August 19, 2010.

Extended Article: Nurturing the Heart: creativity, art therapy and dementia, by Patricia Baines. Practically, the paper is intended for all those people who have or live with and interact with those courageous individuals who have dementia. (pdf file)

National Institute of Neurological Disorders and Stroke, National Institutes of Health (USA) – Frontotemporal Dementia Information Page. Includes links to publications, research, more.

Article: Dementia with Lewy Bodies: Clinical Review. British Journal of Medical Practitioners. The aim of this article is to review the diagnosis and management of Dementia with Lewy Bodies.

Article: REM Sleep Behavior Disorder – eMedicine Health. This disorder may occur in association with various degenerative neurological conditions such as Parkinson disease, multisystem atrophy, diffuse Lewy body dementia, and Shy-Drager syndrome.

Blog Post: Living Alone with Dementia. Protecting and caring for persons with dementia. Alzheimer’s Reading Room.

The Association for Frontotemporal Dementias – Spring 2010 Newsletter (pdf file)

One of the web-based and smartphone services being used by a growing number of people is Evernote, a service where people can store notes, files, photos and more on the Web, then retrieve them from other computers or an iPhone.

The Evernote website recently posted a profile of a user with Traumatic Brain Injury who uses the service to compensate for his short-term memory loss. Reading through the comments after the story, it’s clear this is a tool people with dementia and other diseases could find useful as well. A basic Evernote account is free to set up and use.

This story got me thinking Evernote could be useful for many people here. The story is online at Evernote’s blog.

Jim Coyle

Massive trial to determine effects of lower blood pressure on dementia. Check for more information through this link. (via Twitter)

Vicki’s Medical Expenses

Vicki has been tentatively approved to participate in clinical research studies to help understand more about Frontotemporal Disease for the benefit of others who may be affected now or in the future. But before she can participate in the studies, she has to undergo a series of medical tests and evaluations which aren't covered by her medical insurance. As you can imagine, these tests are expensive and her financial resources are limited.

We're asking you to consider donating toward Vicki's medical expenses. Your support will not only encourage Vicki, but will have benefits for future generations who will know more about FTD. This is a private activity, so donations aren't tax deductible. But each of us can make a real difference. To donate online, just click on the button below.

Thank you. Jim Coyle


Vicki in Faith Magazine

Vicki's story is one of faith, humor and love in the midst of suffering, and is featured as the Cover Story of the November 2010 issue of Faith Magazine. If you haven't already read it, I hope you'll read the story online and learn more about Vicki as she shows us how to live, no matter what our situation is.

Jim Coyle

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