Film/Video, Audio and Multimedia Programs about Dementia

Planning for Hope – Trailer for documentary film about Frontotemporal Dementia and its impact on people. It made its debut May 14, 2010 and has been shown in several professional settings. Beginning in April, 2011, Planning for Hope: Living with Frontotemporal Disease has been shown on 101 U.S. Public Television channels in 48 television markets in more than 23 states. These broadcasts reach 30,940,000 households.

Please share about this film with people you know. One way to tell others is through the media.causes website. Just click on the link and share about “Planning for Hope.”

FTDPlanningForHope.com – More information at the documentary’s website


Webinar Recording: Dr. Brad Boeve – Behavior/Cognitive Issues with PSP, CBD & FTD – Audio and Visual recording of April 29, 2010 webinar sponsored by CurePSP.org and the Association for Frontotemporal Dementia. This recording is in Windows Media Video format (wmv).

Message from webinar host: Please note that there were some technical difficulties at the start and during this webinar. You will see a blank screen for a time before the slides catch up to the presenter, although all the content is intact. Thank you for your understanding!


Online Radio Program: Frontotemporal Dementia: The Other Dementia – November 22, 2009

Frontotemporal Dementia is often lost in the shadow of Alzheimer’s disease but afflicts over 250,000 patients a year. Many times, the diagnosis take years as patients and caregivers struggle to find physicians and advocacy groups that can provide information about an astounding manifestation of symptoms. Joining Kelley Connors, MPH, Real Women on Health! radio show host, are Dr. Bradley Boeve, Chief of Behavioral Neurology at Mayo Clinic with Sharon Denny, Program Director for the Association for Frontotemporal Dementias. The 60-min show highlights a soon-to-be-released documentary film called “Planning for Hope” about FTD and include the real-life experiences from the film’s creators, Susan Grant and Cindy Dilks, as well as the perspective of Sheila Bourgeault, whose husband died in early 2009 from FTD.



Radio Program: Frontotemporal Dementia: What you need to know about FTD! – September 26, 2009

This 53-minute program focuses on the form of dementia known as FTD. Frontotemporal dementia can strike as early as 30 and affects the frontal and temporal lobes of the brain leading to loss of reasoning, difficulty finding words, inpulse control, and loss of executive functioning. Often misdiagnosed as Alzheimers, FTD is a much more rapidly progressing form of dementia striking individuals at a younger age. Dr Murray Grossman, leading FTD researcher of Penn Medicine from the University of Pennsylvania, is a guest. He gives an overview of the disease, clinical trials and the need for brain tissue donation after the death of affected individuals in order to find a cure.

Susan Grant, a former financial advisor, shares her story of living with FTD. She and her life partner, Cindy Dilks have created a documentary to educate the world about the impact of this disease. Cheryl Ann Borne, a marketing executive in the pharmaceutical industry, whose mother is in the final stages of FTD shares her personal journey. This one hour is filled with education about the disease, true stories of those living with it and hope for the future cure.


Podcast: Leaders in Elder Care – Dr. Richard Taylor on Alzheimer’s – The Farthest Thing From the Long Goodbye. In this 45-minute podcast, Leaders in Eldercare host Ryan Malone talks with Dr. Richard Taylor, diagnosed with Alzheimer’s-type dementia in 2001, who is one of the leading advocates for persons with dementia. Malone writes “I also consider it a ‘must list’ for people who have yet to spend much time with people affected dementia. Enjoy!” This recording is of interest for persons affected by dementia of any type.

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Inside Eldercare website.


Frontotemporal Dementia: Walking the Path – Trailer for Film by Hollywood 27 Productions


Vicki’s Medical Expenses

Vicki has been tentatively approved to participate in clinical research studies to help understand more about Frontotemporal Disease for the benefit of others who may be affected now or in the future. But before she can participate in the studies, she has to undergo a series of medical tests and evaluations which aren't covered by her medical insurance. As you can imagine, these tests are expensive and her financial resources are limited.

We're asking you to consider donating toward Vicki's medical expenses. Your support will not only encourage Vicki, but will have benefits for future generations who will know more about FTD. This is a private activity, so donations aren't tax deductible. But each of us can make a real difference. To donate online, just click on the button below.

Thank you. Jim Coyle


Vicki in Faith Magazine

Vicki's story is one of faith, humor and love in the midst of suffering, and is featured as the Cover Story of the November 2010 issue of Faith Magazine. If you haven't already read it, I hope you'll read the story online and learn more about Vicki as she shows us how to live, no matter what our situation is.

Jim Coyle

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