Category: My Story

Today is a bad day. Tomorrow will be good

I will never understand how the brain works. Or, in my case doesn’t. I still have the intelligence to know how things should be. But I have no control over how to perform the actions to make life normal.. Yesterday was a ‘good day’. What does that mean to someone with FTD? I had no …

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Permanent link to this article: https://soncountry.net/voice/2014/06/today-is-a-bad-day-tomorrow-will-be-good/

Late Night and Parish Life

It’s 1:39a. I’m playing games on both my PC and my iPad. Tomorrow I am hoping (praying) that I can attend our parish healing Mass. I can’t sleep. I’ve had 3 sessions of dystonia (seizure-like, muscle spasms), and everything points to my past of being unable to go outside my home. So, I take the …

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Permanent link to this article: https://soncountry.net/voice/2014/04/late-night-and-parish-life/

Do Not Ask Me To Remember

Do not ask me to remember

When we saw it, Vicki and I each wanted to share this message with you. It captures this time in Vicki’s life so clearly.

Permanent link to this article: https://soncountry.net/voice/2014/03/ask-remember/

Sims, Design, and FTD

Thanksgiving

I am a diehard The Sims FreePlay gamer. I work hard on it every day because (1) I enjoy it, and (2) It forces me to think sequentially, which is the hardest part of my disease (Frontotemporal Dementia – FTD). And I am proud of the work I have done. I’ve begun posting photos of …

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Permanent link to this article: https://soncountry.net/voice/2014/01/sims-design-ftd/

Caught Up In The Meat loaf

For 4 years I have won the battle with FTD (Frontotemporal Dementia) and, all things considered, including all the potential threats, I’ve had a good four years. But lately, Papa, I am afraid. Not like when I had spiders coming out of the ceiling light, or thought so. Not like ‘how will I live now …

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Permanent link to this article: https://soncountry.net/voice/2013/10/caught-up-in-the-meat-loaf/